Indi Gregory, the eight-month-old baby at the centre of a legal battle between her parents and the NHS, has died after her life support was withdrawn, her family said.
Indi was critically ill with an incurable genetic mitochondrial condition.
In a statement released through Christian Concern, her father Dean said: “Indi’s life ended at 1.45am.
“Claire and I are angry heartbroken and ashamed. The NHS and the Courts not only took away her chance to live a longer life, but they also took away Indi’s dignity to pass away in the family home where she belonged.
“They did succeed in taking Indi’s body and dignity, but they can never take her soul. They tried to get rid of Indi without anybody knowing, but we made sure she would be remembered forever. I knew she was special from the day she was born.
“Claire held her for her final breaths.”