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The Economist
The Economist
16 Apr 2025


NextImg:How Britain decides which drugs to buy
Britain | The value of a life

How Britain decides which drugs to buy

The NHS can’t afford all the latest miracle drugs. A quango decides who misses out

ZOOM CALLS are rarely matters of life and death. But on April 3rd one such meeting carried grave consequences for 33 children in England with a form of Batten disease, a rare degenerative brain disorder. For hours a committee of health experts and economists pored over spreadsheets, weighing the benefits of Brineura, an enzyme therapy. Brineura slows the disease’s progress, but has a list price of £523,000 ($673,000) per patient a year. The task was to decide whether the drug provides enough value for money for the National Health Service (NHS) to keep funding it (untreated, children rarely make it past the age of 12 and lose the ability to walk, talk and swallow). One parent put it bluntly: “You’re putting a value on a child’s life.”

This article appeared in the Britain section of the print edition under the headline “How NICE can you be?”

This image is a political cartoon-style illustration showing a caricature of a man—possibly a UK politician—clutching a distorted Union Jack flag. The man appears dazed or dizzy, with scribble-like lines around his head, exaggerated features, and a dis

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Nine months into power, the Labour Party has haemorrhaged support


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The terms “woman” and “sex” refer to “a biological woman and biological sex”